WEBVTT 1 00:00:00.040 --> 00:00:02.960 align:middle VOICE-OVER: A pinprick with big impact. 2 00:00:03.080 --> 00:00:04.960 align:middle What is that impact? 3 00:00:05.080 --> 00:00:11.040 align:middle In the past 50 years, more than 9 million newborns have been screened. 4 00:00:11.160 --> 00:00:15.720 align:middle In total, more than 42 million drops of blood have been drawn... 5 00:00:15.840 --> 00:00:19.520 align:middle and more than 6,000 children with disorders screened for in the test... 6 00:00:19.640 --> 00:00:21.680 align:middle have been detected at an early stage. 7 00:00:21.800 --> 00:00:24.000 align:middle So a big impact indeed. 8 00:00:24.120 --> 00:00:25.760 align:middle How it all started? 9 00:00:25.880 --> 00:00:31.880 align:middle The neonatal heel prick screening started in the Netherlands on 1 September, 1974. 10 00:00:32.000 --> 00:00:35.560 align:middle What started with one disorder, the metabolic disorder PKU... 11 00:00:35.680 --> 00:00:40.640 align:middle has developed over the last 50 years into a programme with 27 disorders... 12 00:00:40.760 --> 00:00:44.120 align:middle of which 20 are metabolic disorders... 13 00:00:46.320 --> 00:00:48.600 align:middle two endocrine disorders... 14 00:00:48.720 --> 00:00:51.360 align:middle forms of hereditary anaemia... 15 00:00:51.480 --> 00:00:54.000 align:middle one muscle disease, SMA... 16 00:00:54.120 --> 00:00:56.600 align:middle one immune disorder, SCID... 17 00:00:56.720 --> 00:00:59.000 align:middle and cystic fibrosis. 18 00:00:59.120 --> 00:01:01.080 align:middle A quick note on how the test works. 19 00:01:01.200 --> 00:01:06.560 align:middle The heel prick test is being taken between 72 and 168 hours after birth. 20 00:01:06.680 --> 00:01:11.480 align:middle The heel prick detects genetic disorders at an early stage. 21 00:01:11.600 --> 00:01:13.560 align:middle This allows treatment to start on time... 22 00:01:13.680 --> 00:01:16.800 align:middle so that damage to the child's physical and mental development... 23 00:01:16.920 --> 00:01:19.040 align:middle can be prevented as much as possible. 24 00:01:19.160 --> 00:01:24.240 align:middle A major operation with many parties cooperating closely. 25 00:01:24.360 --> 00:01:28.920 align:middle Approximately 350 municipalities in the Netherlands ensure on a daily basis... 26 00:01:29.040 --> 00:01:33.200 align:middle that the RIVM receives all birth registrations... 27 00:01:33.320 --> 00:01:37.240 align:middle which amounts to 170,000 babies born annually. 28 00:01:37.360 --> 00:01:41.160 align:middle Around 99 per cent of all babies get the heel prick. 29 00:01:41.280 --> 00:01:45.440 align:middle The test is done by screeners of youth health services. 30 00:01:45.560 --> 00:01:48.800 align:middle They send the blood samples to the screening lab. 31 00:01:50.080 --> 00:01:52.200 align:middle If the result deviates... 32 00:01:52.320 --> 00:01:56.000 align:middle the medical advisors from the RIVM and the GP will ensure... 33 00:01:56.120 --> 00:01:59.800 align:middle that the baby will be seen by the paediatrician as soon as possible. 34 00:01:59.920 --> 00:02:03.920 align:middle One of the seven UMCs will do follow-up research. 35 00:02:04.040 --> 00:02:09.880 align:middle This way, 225 children with serious conditions are detected early each year. 36 00:02:10.000 --> 00:02:13.360 align:middle Therefore, they can face a better life. 37 00:02:13.480 --> 00:02:17.640 align:middle As said: a pinprick with big impact. 38 00:02:20.880 --> 00:02:23.960 align:middle Visit www.pns.nl/en/multiple- languages/english/heel-prick.